Tag Archives: survey

Survey: General Coping Strategies

Welcome to week 3 of our survey.

I’ve slightly revised the schedule due to some additional questions that were posted over the weekend. This week we’ll do general coping strategies. Next week we’ll do special skills and fun stuff. When I get back from my great big adventure some time in May, we’ll do acceptance and gender/sexuality/body image.

You all probably know the drill by now, but in case anyone new wanders in: answer as many questions as you like, here or anonymously at Survey Monkey. Talk amongst yourselves about the answers if you like.

Also, you might want to have a look at the last two weeks’ surveys on relationships and sensory sensitivities/work and school strategies. Answers to both are still coming in!

Take the Survey Monkey version here: general coping strategies.

Although some questions reference diagnosis, this is open to all those who identify as on the spectrum (professionally diagnosed, self-diagnosed  and suspected aspies/autistics/people with autism).

General Coping Strategies

  1. What positive changes did you make to your life after your diagnosis?

  1. Over-apologising/apologising as a reflex action: Seriously, “sorry” has become my standard greeting to people at uni. Does anyone else do this? Has anyone managed to break the habit? How?

  1. How do you all describe what it’s like to be you to someone else? What do you compare these things to in a way that makes others have that aha! moment? more details here

  1. Does anyone else have issues with conflict/arguments/shouting matches in front of you? How do you deal with this?

  1. Does anyone else have trouble with “future planning”? a little more info here

  1. How do you stay on top of cleaning? What contextual cues do you use to get you to do things around the house?

  1. Do you catastrophise and if so, have you strategies for managing it?

  1. Do you experience emotional distress, such as depression and grieving, in unusual ways, such as increased sensory challenges or physical pain?

  1. Do you have trouble speaking at a normal pace? Do you have any tips for modulating your voice?

  2. Have you experienced chronic fatigue or chronic pain? Do you have other chronic illnesses? If so, do you think autistic traits such as poor emotional awareness and sensory differences such as oversensitivity to pain or muscle discomfort have any effect on these?

Survey: Sensory Sensitivities and Work/School Strategies

The response to the relationship survey last week was fantastic! People continued adding answers all week, so you might want to pop back there and read the latest responses if you haven’t.

This week we have 8 questions about sensory sensitivities and 6 about work/school. You can answer here in the comments or anonymously at Survey Monkey. I’ll bring the Survey Monkey answers over and paste them as comments.

A reminder: this is open to all those who identify as on the spectrum (professionally diagnosed, self-diagnosed  and suspected aspies/autistics/people with autism). Answer as many or as few questions as you choose. Tell us about yourself. Have fun!

I’m so excited by how many answers each person got to their question last week. Y’all are awesome. On to the questions . . .

Survey Monkey has a 10 question limit per survey so I had to make 2: sensory sensitivities and work/school strategies.

Sensory Sensitivities

  1. Does anyone else in the adult autistic blog-munity have issues with temperature sensitivity? If you have issues with heat, how do you cope with summer weather? With the effects of exercise? more details here

  1. For those who have hyper-sensitivity to light and sound: How do you cope when you find yourself starting to get overwhelmed, but can’t leave immediately? How do you recognize when you’re starting to hit that point of sensory overload? How do you deal with the aftereffects of the overload – and what aftereffects do you notice? How long can it take to deal with the aftereffects? more details here

  1. What texture sensitivities do you have? What specific textures are bad? How does your body react to them? more details here

  1. Bras. Do you also find them very stressful to wear? If so, have you come up with a solution to that?

  1. Shoes. Do you have difficulty finding comfortable shoes? What is your preferred choice of footwear?

  1. Does anyone else find showers almost physically painful?

  1. About sensory issues, how did you react to a overload and did you know at first why you reacted this way? Or was it simply a reaction without really know why you were annoyed/angry/overreacting?

  1. How many of us here find earplugs and Mp3 player to be important when going out? Does the stress level go up when you can’t have it on when being stuck in crowed or noisy places?

Work/School

  1. What kind of job would be right for your own ‘brand’ of autism?

  1. If you work, how do you cope with your errors in understanding they way that most humans think and behave, not just non-verbal language, but office politics and similar inexplicable behaviours?

  1. I get very anxious about interviews – what strategies do you have to cope with these?

  1. How do you deal with being bullied at work? (or anywhere else)

  1. How do you get a job if you can’t use the telephone?
  1. Have you ever asked for accommodations at work or school? How did it go?

Survey: Let’s Talk about Relationships

Thank you for all of the thoughtful questions! There are a total of 49–obviously too many to answer in one week. I’ve divided them up by subject, because, you know, autistic and need to categorize everything. I’ll spread the survey out over the next four weeks.

The vote on where to answer was a virtual tie so we’ll do it both ways. You can answer here in the comments or you can answer anonymously at Survey Monkey.

If you answer at Survey Monkey, just fill out the questions that apply/appeal to you and leave the rest blank. I’ll bring the Survey Monkey answers over here and paste them into comments so that everyone can read them.

If you answer here, it might be helpful to number your answers according to the question numbers. So if you’re answering questions 3, 5, 7 and 8, your answers would be numbered 3, 5, 7 and 8. That way we can easily scan down the comments looking for answers to the questions that interest us most.

A few questions were on the long side so I tried to include the essential information here and then added a link back to the original comment for more details.

This week’s topic is . . . relationships–friends, family, significant others, etc. Next week will be work/school and sensory sensitivities. Week three will be general coping strategies and acceptance. Finally, week four will be special skills and fun stuff.

ETA: Although a couple of questions reference diagnosis, this is open to all those who identify as on the spectrum (professionally diagnosed, self-diagnosed  and suspected aspies/autistics/people with autism).

Relationship Questions

  1. Does anyone find that you really long for close friendships?

  2. Does anyone obsess over someone you’ve just met? ( almost like they become your ‘special interest’ )

  3. Is anyone part of an Aspie married couple or long-term partnership?

  1. What stuff have you learned about interacting with other people that you think is important to know but was not obvious to you at first?

  1. How do you cope with parents who care, and are taking care of you (or at least helping you work on taking care of yourself), but don’t *understand* you? Don’t have the conception of how hard it can be to do things, like work on not taking naps when you end up exhausted, or deal with financial stuff, or do job searching, or talk on the telephone? more details here

  1. How has your partner (if you have one) reacted to your late diagnosis and do they now see you as ‘disabled?’

  1. Do you have autistic friends and if so, is it easier to hang with them rather than neurotypical folk?

  1. What about the times that you don’t feel like having physical interactions with anyone? You don’t want hugs, kisses, or even simple touches. I am usually overwhelmed with sensory stuff at that point (auditory, visual, touch, taste, the whole mess) and I have trouble articulating it. Should I wait until I’m not in a crisis and try to describe these things to others in a way they might understand better? more details here

  1. Has anyone been disowned by their family at diagnosis?

  2. If you have children, are they aware of your ASD and how do they feel about it?

The One Where We Ask Our Own Questions

In a comment on last Tuesday’s post, Lori from A Quiet Week in the House had a great suggestion: “A thought for your Tuesdays–could you poll your readers? I love reading about other’s perceptions, strengths, and areas of concern. It might be a good way to help others discover coping skills.”

So what do you think, readers? Shall we have a poll?

Wait, before you answer that, let me share something with you that I’ve been wanting to say for a while now. For me, one of the most enjoyable things about blogging is reading your comments. I don’t just mean the “this is great” aspect of the comments, though of course that feels good. More than that, I enjoy when you share your experiences.

I’m just one person. Though I do a lot of research, I write from a very personal perspective. When you read what I’ve written and then share how something affects you, it’s incredibly valuable, not just to me but to everyone else who comes along and reads the post and the comments.

And lots of people do read the comments. What we’re doing here–and I really do mean we as a group–is creating a rich, detailed account of what it means to be an autistic adult. We’re learning from each other and we’re creating something for the hundreds of silent readers who find this blog looking for information on some subject or other.

The Poll

So, the poll. Do you have a question you’ve always wanted to ask other autistic people? It could be something practical like, “how do you cope with _______.” It could be something you’ve noticed in yourself and wonder if others experience. Maybe you’re curious about favorite special interests or stims or stim toys. Maybe you have a tough thing you’re facing in life and want to know if others have dealt with it in the past.

Here’s what we’ll do:

1. Leave a comment on this post with your question(s). You can post more than one question and I’ll try to include everything, but I don’t want the survey to be too ginormous for us to answer.

2. I’ll collect the questions into survey format.

3. I’ll post the survey next Tuesday and we’ll answer then. I want this to be fun and not a lot of work, so let’s plan to answer as many or as few questions as we want. No pressure.

There are two ways I can set up the survey:

  1. If you prefer to answer anonymously, I can create a Survey Monkey survey that we can answer without revealing our identities. I can then bring the answers back here in the form of a post, with all answers kept anonymous. We may get more answers this way. 
  2. I can post the questions and we can answer in the comments. We may get more trustworthy answers with this option and we’d be able to ask follow-up questions (within reason, of course).

Let me know which option you prefer. Majority rules.

Anything I’m missing? Mostly, I want this to be fun and informative and not like homework for you.

ETA: Don’t be shy about adding more questions. If there end up being a lot, I can split them up over two or more weeks to keep things manageable.