Tag Archives: tactile defensiveness

At the Intersection of Gender and Autism – Part I

Note: This is my contribution to the Ultraviolet Voices anthology. It’s nearly 5000 words long, so I’m going to serialize it here over the next 3 weeks.  

At five, I wanted to be a boy. I don’t know what I thought being a boy meant. Maybe I thought it meant playing outside in the summer, shirtless and barefoot. Maybe I thought it meant not wearing dresses.

Dresses were all scratchy lace trim and tight elastic sleeves. Stiff patent leather shoes pinched my sensitive feet. Perfume tickled my nose. Tights made my legs itch and had maddening seams at the toes.

Too young to understand sensory sensitivities, I followed my instincts. While other girls favored frilly clothes, I gravitated toward the soft comfort of cotton shirts and worn corduroys.

Somehow, comfort got mixed up with gender in my head. For decades, “dressing like a girl” meant being uncomfortable. And so began a lifelong tension between being female and being autistic.

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For a lengthy stretch of adulthood, I had an entire section of my closet that could best be described as aspirational. Pants suits. Dressy blouses. Pumps and sandals. Skirts, bought and worn once for a special occasion. Dresses, bought and worn never, before being spirited off to the thrift store.

I preferred ripped jeans and running shoes, hoodies and baggy t-shirts. Comfortable and comforting, just as they had been in childhood.

Continue reading At the Intersection of Gender and Autism – Part I

Sensory Sensitivities and Atypical Sensory Processing

This is the first in a series of posts about autistic sensory processing and sensory sensitivities.  Part 2 | Part 3 | Part 4

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I once had a t-shirt that I really wanted to like. It was a souvenir from a trip to Hawaii. The color, the material, the fit, the design–all perfect. It would have been my favorite new shirt, except for one thing.

It had a tiny thread in the collar that scratched my neck. A thread so small that I couldn’t see it. I’d cut out the offending tag and all of the visible stitching holding the tag in place, but that one little thread refused to go.

So I decided that I was going to get used to it. I was going to pretend that evil remnant of plastic thread didn’t exist. If it was too small to see, surely I could ignore it.

I tried. I really did.

I put the shirt into my summer t-shirt rotation and wore it at least once a week. The material got softer with each washing, which only made me want to love it more. It was one of the most comfortable shirts I owned. It would have been that most elusive of things–the perfect shirt–except for that microscopic thread.

I developed seriously mixed feelings about the shirt. I was determined not to let the thread win. It became A Thing. Some days I would wear it all day, doggedly ignoring how the thread jabbed at the back of my neck when I moved this way or that way. Other days I’d only make it to early afternoon before tossing the shirt in the laundry and changing–with a sigh of relief–into a more comfortable shirt. One with the tag cut cleanly out.

This went on for years. I wore the shirt in spite of how it made my neck itch and burn, in spite of the way it made me unconsciously pull at my collar all day long. I wore it right up until the day I admitted to myself that I was never going to get used to that thread. Putting my Hawaii shirt in the donation bag felt like a defeat. A thread–so small it was invisible–had gotten the better of me.  Continue reading Sensory Sensitivities and Atypical Sensory Processing

Beyond The Talk: What Else Autistic Girls Need to Know About Puberty

This was originally posted at a group blog that I’m part of: We Are Like Your Child. It primarily addresses parents of young autistics, but I’m reposting here because I thought other autistic adults might have helpful tips to add or their own wishlist of things they’d known about puberty.

One request: if you talk about anything traumatic, please reference it obliquely. There are some younger readers here now and I could see others finding this post in a search for autism and puberty or adolescence.

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When it came to puberty, my parents did what many parents in the seventies did: they gave me a book about puberty written especially for girls. It was a slim cranberry hardback with an ambiguous title like “Everything is Changing.”

I was a voracious reader, so I would curl up in my beanbag and scour the pages for clues to the mysterious changes that were on the horizon. I think I had many of the same fears, anxieties and curiosities about puberty as my friends had. Certainly my body went through the same changes that other girls experienced. However, I think there are some areas where girls on the spectrum would benefit from additional information or guidance. That’s what I’m going to focus on in this post.

Many of the issues I want to touch on also apply to boys. I’m specifically addressing the issue of puberty in girls because I was once a girl and I raised a daughter. Girls are my wheelhouse. If you’re looking for information about boys, I hope you can adapt some of the ideas below but, honestly, boys are a mystery to me.

adolesence

In addition to talking to your autistic daughter about all of the things parents normally cover when talking about puberty, consider discussing the following when you feel the timing and circumstances are right:  Continue reading Beyond The Talk: What Else Autistic Girls Need to Know About Puberty

Tactile Defensiveness

Polly Flinders was the bane of my childhood. I hated her with a passion. Why? Because she made dresses like this that were all the rage for little girls in the seventies:

A classic Polly Flinders dress. I had one just like this, same color and all.
A classic Polly Flinders dress. I had one just like this, same color and all.

For a four-year-old with tactile defensiveness, that dress was an instrument of torture. I can still feel the exposed elastic biting into my upper arm, the scratchy lace prickling my skin, the rasp of the tag on the back of my neck, the smocking bunching up across my chest.

Thanks to Polly Flinders and her ilk, I was branded a tomboy early in life. Not because I didn’t like dresses, per se. The way clothing feels is ten times more important to me than how it looks and “boyish” clothes (jeans, plain cotton shirts) were more comfortable.

I still shop for clothing based on feel first and look second. Where a lot of women see exciting new outfits, I see this:

Thanks to my tactile sensitivities, I'm a defensive shopper when it comes to clothing.
Thanks to my tactile sensitivities, I’m a defensive shopper when it comes to clothing.

Clothes shopping is a matter of eliminating the things I know will be too uncomfortable then choosing what I like from the remaining options. If there are any.

When I do find something I like–and by like, I mean something that’s comfortable–I tend to buy it in multiples. I have a rainbow of v-neck t-shirts and long sleeve tees, all exactly the same brand, style, material and cut. Last weekend, I found a soft comfy sweater at Old Navy and bought it in three different colors.

When I like something, I’ll wear it until it literally falls apart. The few things I really love–my favorite pair of jeans, my softest t-shirt–I put on as soon as they come out of the wash. They rarely get hung up in the closet.

That isn’t to say that I live in tees and jeans. I have some dressier clothes that are comfortable. I try to dress both comfortably and appropriately for the situation. You’re just not going to find me greeting my husband at the door in pearls and heels like June Cleaver.  Continue reading Tactile Defensiveness

Lessons from an Aspergers-NT Marriage (Part 2)

This is the 2nd part of a 4 part series about the lessons my husband (NT) and I (aspie) have learned during the 25 years we’ve been married.

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Accept that aspies have good days and bad days.

I try hard to keep some of my more annoying aspie traits under control, but there are times when symptoms that I thought I had a handle on suddenly resurface or worsen. This tends to happen when I’m stressed or anxious.

A few weeks ago, an unplanned four-hour wait at the DMV triggered a bout of perseverative thinking. Even though I was aware of it, it was difficult to stop going over and over the situation in my head and, worse, out loud. It wasn’t like I wanted to keep recalculating our potential wait time based on the rate of customers being served times the number of people ahead of us factoring in the bizarre DMV numbering system that involved six different letter prefixes plus the periodic return to the queue of skipped numbers. It wasn’t that I was enjoying obsessing over each clerk who disappeared on break, thereby lengthening our wait time, or repeatedly pointing out how arbitrary the list of required identity documents was. I just couldn’t stop myself from doing it, even though I was aware of what was happening and aware of how my perseveration was making a stressful situation worse for both of us.

Anxiety or sensory overload can aggravate a wide variety of Asperger’s symptoms. When I’m stressed I find that I’m more clumsy, less open to being touched, more rigid in my thinking, less willing to deviate from routine, more vulnerable to perseverate thinking, more prone to tunnel vision, and more likely to struggle with auditory processing. Symptoms that don’t normally interfere with my functioning can become a big obstacle. I know it’s frustrating for my husband to find himself in a stressful situation and then have to deal with an outbreak of my aspie traits on top of everything else. These are the moments that really test our marriage and I’m still working on finding ways to make them less awful for both of us.

Try to balance the aspie partner’s touch sensitivities with the NT partner’s need for physical affection

Touching, one of the most important and fundamental aspects of an intimate relationship, can be uncomfortable for people with Asperger’s. Although I’ve made a lot of progress in this area, there are still times when I shrink away from being touched.

Certain types of touching in particular–light touches and those that come at unexpected times–are more likely to be uncomfortable. When I’m intensely engaged in an activity, being touched often registers as an unwanted distraction rather than spontaneous affection. I’m also more likely to pull away from touch when I’m stressed or anxious.

Then there are the times when my brain is so busy trying to figure out where a certain type of touch is headed that it’s hard to simply relax and enjoy the moment. Because aspies don’t get many of the nonverbal cues involved in intimate relationships, we rely heavily on the intellectual side of our brains to process how an intimate moment is going to proceed. Yeah, that’s about as romantic as it sounds.

All of this can be very hard on an NT partner who naturally craves physical affection. Although it’s hard to change how I feel about being touched at the “wrong” time, I try to compensate by initiating physical contact that I’m comfortable with at a time that’s good for me.

Author Liane Holliday Willey once took a lot of heat for including holding her husband’s hand five times a day on her “to-do” list. Putting handholding on a to-do list may sound cold and mechanical but that doesn’t mean that the action itself has to be mechanical. Since I’ve begun consciously looking for opportunities to initiate small touches during the day, I find that being physically affectionate has become more of a natural instinct for me and that feels good.

Accept that the NT partner may need to compensate for the aspie partner’s social skills deficits at times.

No matter how hard I work at improving my social skills, I still regularly miss nonverbal cues, resulting in everything from confused looks and awkward pauses to downright hostility from other people.

Here’s a recent example from when The Scientist and I met with a saleswoman about a new apartment:

Saleswoman to The Scientist  (who she’d met previously): “It’s good to see you again.”
The Scientist : “It’s good to see you, too.”
Saleswoman to me: “I’m Linda. It’s nice to meet you. Have a seat.”
Me (shaking her offered hand then sitting down): “Thanks, it’s nice to meet you too.”
{awkward pause}
The Scientist : “Oh, Linda, I don’t think you met my wife.”

I had no idea what was causing the awkward pause until The Scientist jumped in and offered my name to the saleswoman. What threw me was this: The Scientist had already met Linda and didn’t introduce himself. I must have been subconsciously modeling his behavior so I didn’t introduce myself either.

This sounds like a minor hiccup in the conversation but it happens frequently and it unsettles people. As an aspie–and an adult–it can be hard to accept that you need this type of help from your partner. Again, get over it. We all have skills that come naturally and social skills aren’t on the list of natural talents for aspies.

This is an area where practice can help. If the NT partner is willing, you can try roleplaying or talking through how unfamiliar events might play out. However, both partners need to understand that while aspies can work at improving social skills, it’s unlikely that they’ll achieve the sort of social proficiency that comes naturally to NTs.

Having to frequently repair social errors is hard on the NT partner and will probably continue to be an issue throughout your partnership. Acceptance can go a long way in situations where change is slow and inconsistent.

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In part 3: Compromise, communication aspie-style and understanding triggers