The Difference Between a Sensory Sensitivity and Disliking Something

This is part 2 in a series about sensory sensitivities and atypical sensory processing. Read the other parts:    Part 1  |  Part 3  | Part 4

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I don’t like pistachios.

I have a sensory sensitivity to bright lights in a dark room.

What’s the difference between the two? I can eat pistachios if I have to. I won’t enjoy it, but if I happened to be served something that had some pistachios on or in it, I could eat it without having a negative biological reaction.

On the other hand, I can’t watch TV or look at a computer monitor in a dark room. The brightness of the screen is painful and my instinctive reaction is to look away or close my eyes. If The Scientist and I are watching TV at night, I need a small amount of ambient light to reduce the contrast between the television screen and the darkened room. Without it, I’ll squint at the screen and quickly develop a headache.

I know this because, like the t-shirt incident, I’ve tried to acclimate myself to watching TV in the dark.

I can see how someone who doesn’t know that I have sensory sensitivities might assume that I dislike watching TV in the dark in the same way that I dislike pistachios. If you’ve never experienced sensory sensitivities, it can be hard to believe that they’re real and that they have a biological component to them. But my body’s reaction to those two scenarios is very different.  Continue reading The Difference Between a Sensory Sensitivity and Disliking Something

Sensory Sensitivities and Atypical Sensory Processing

This is the first in a series of posts about autistic sensory processing and sensory sensitivities.  Part 2 | Part 3 | Part 4

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I once had a t-shirt that I really wanted to like. It was a souvenir from a trip to Hawaii. The color, the material, the fit, the design–all perfect. It would have been my favorite new shirt, except for one thing.

It had a tiny thread in the collar that scratched my neck. A thread so small that I couldn’t see it. I’d cut out the offending tag and all of the visible stitching holding the tag in place, but that one little thread refused to go.

So I decided that I was going to get used to it. I was going to pretend that evil remnant of plastic thread didn’t exist. If it was too small to see, surely I could ignore it.

I tried. I really did.

I put the shirt into my summer t-shirt rotation and wore it at least once a week. The material got softer with each washing, which only made me want to love it more. It was one of the most comfortable shirts I owned. It would have been that most elusive of things–the perfect shirt–except for that microscopic thread.

I developed seriously mixed feelings about the shirt. I was determined not to let the thread win. It became A Thing. Some days I would wear it all day, doggedly ignoring how the thread jabbed at the back of my neck when I moved this way or that way. Other days I’d only make it to early afternoon before tossing the shirt in the laundry and changing–with a sigh of relief–into a more comfortable shirt. One with the tag cut cleanly out.

This went on for years. I wore the shirt in spite of how it made my neck itch and burn, in spite of the way it made me unconsciously pull at my collar all day long. I wore it right up until the day I admitted to myself that I was never going to get used to that thread. Putting my Hawaii shirt in the donation bag felt like a defeat. A thread–so small it was invisible–had gotten the better of me.  Continue reading Sensory Sensitivities and Atypical Sensory Processing

Executive Function Summary

Some of you mentioned that it would be nice to have a concise summary of the key elements of executive function impairment to share with family members and others. So I made a thing!

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You’ll need javascript to view it. You can pause the slideshow by hovering your mouse over it and then clicking the pause button.

I also created a new Executive Function page with links to the Executive Function Primer posts plus the slideshow and some introductory text.

Autistic Motherhood: The Social Dimension

The first article in a 3-part series on motherhood is out today at Autism Women’s Network:  Motherhood: Autistic Parenting

I kicked off the series with the social aspects of motherhood because that was one of the biggest challenges for me and for many of the women who answered the survey questions. In the article, I focused a lot on the areas of difficulty that we experience and touched on some general ideas for  supports. 

There is clearly a big gap when it comes to resources for autistic moms. I’m wondering if any of you have found solutions to the need for social supports. Do you know of online support groups for mothers on the spectrum? Have you found ways to communicate effectively with your children’s school or have you gotten any social supports from local social services organizations? Have you enlisted help from your own parents or family members when it comes to the social aspects of being a mom? If you’ve done things that have worked, I would love to hear about them and I think lots of people would benefit from having a pool of realistic options to draw upon.

As always, I owe a huge thank you to everyone who answered the survey questions. There were more than 70 responses, many of them incredibly detailed. I’m humbled by how honestly and openly you all share your stories. Although I couldn’t include quotes from everyone, I did my best to find the common threads of our social struggles and portray those in the article through representative quotes. There are still two more articles coming, so if you’d like to contribute, please feel free to fill out the survey in the coming days.

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Executive Function Primer (Part 4)

This is part 4 in a series about executive function. After wrapping up the discussion of regulatory functions with some thoughts about Cognitive Flexibility, it talks a bit about some models of EF and how the various pieces fit together.  Looking for the other parts? Part 1 |  Part 2 | Part 3 

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Cognitive Flexibility

Cognitive flexibility is all about change. Changing your mind. Changing your opinion. Changing your beliefs. Coping with change. Understanding why change happens.

In a more formal sense, it’s the ability to shift your thinking or attention is in response to changes in the environment or situation (such as new rules, information, demands or goals). If you’ve ever wondered where the autistic tendency toward rigid thinking and routine comes from, this is it. Change requires cognitive flexibility. It’s not necessarily that we don’t want to do things differently. Impaired executive function makes it harder to adapt to change by forming new thought or behavior patterns.

Variation in executive function capacity can explain why one day it’s not a big deal if the bus is five minutes late or your favorite shirt is in the laundry but on another day, this kind of small disruption to routine triggers a meltdown. What appears to be a fit of irrationality is actually a failure of the prefrontal cortex to cope with change in the expected way.

Cognitive flexibility also refers to considering multiple aspects of a situation at the same time, such as seeing opposing points of view or multiple characteristics of an object. When you think about it, there is little difference between “lack of empathy” or “impaired theory of mind” and impaired cognitive flexibility. Not seeing the other person’s point of view can be as simple as having difficulty seeing multiple aspects of a situation at the same time.

Finally, cognitive flexibility includes task switching, which is sometimes listed as a separate component of executive function. Difficulties with task switching are what make it hard to stop playing World of Warcraft and start making dinner. Or to pick up where you left off on a task after being interrupted. Poor task switching is also why people will often say that autistic people are so good at doing repetitive tasks. It might be more accurate to say that we’re not very good at stopping.  Continue reading Executive Function Primer (Part 4)

Executive Function Primer (Part 3)

This is part 3 in a series about executive function. It looks at the regulation functions that are related to initiating, monitoring and inhibiting our actions and thoughts. Looking for the other parts? Part 1 |  Part 2

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The second category of executive function components, regulation, includes cognitive flexibility and the initiation, monitoring and inhibition of actions. These executive functions are primarily related to how we interact with our environment.

Inhibition

When you think of inhibition, you probably think of the common usage which means a feeling of self-conscious restraint. The inhibition related to executive function is somewhat different. It refers to our ability to block or suppress a thought or action, either consciously or subconsciously.

Biologically, inhibition takes place in three different realms: motor inhibition, cognitive inhibition and emotional inhibition. It’s quite possible that you’ve never even thought about inhibition in this way and yet it has a huge impact on your daily life.

Our brains are constantly inhibiting–or failing to inhibit–thoughts and actions. To focus attention on one thing, we have to inhibit countless other distracting inputs (remember the top-down and bottom-up attention systems as well as selective attention). To call up a desired piece of information from memory, we have to inhibit the retrieval of millions of irrelevant bits of information. To change a behavior we have to inhibit habitual actions. And sometimes, to get through a difficult situation, we have to inhibit our emotional reactions (or, if you’re alexithymic, consider the opposite case–your emotions are involuntarily inhibited, perhaps in part because of dysfunctional inhibition).

When you think about it, a lot of autistic traits could be traced back to poor inhibition. Infodumping, even when we know the other person has lost interest. Catastrophizing long past the point where it’s logical. Blurting out what we’re thinking only to regret it a split second later. Spending the day lost in a special interest when we really did mean to get all those chores done. Even stimming could be viewed as poor motor inhibition. What if all people have a natural tendency to stim, but neurotypical people are just better at naturally inhibiting their motor function?

Extreme difficulty with inhibition can lead to impulsivity, which is more characteristic of ADHD than autism, but can be present in both. Often, impulsivity is mistaken for problem behavior and met with punishment as a means to extinguish the problem. Like other aspects of dysfunctional EF, poor inhibition isn’t something that can be fixed by simply trying harder or having more self-discipline. Support can help. Accommodations can help. Understanding can help. Practice can help. Punishment and shaming only hurt.  Continue reading Executive Function Primer (Part 3)

Executive Function Primer (Part 2)

This part 2 in a series about executive function. It looks at the remainder of the organizational functions that were introduced in part 1 : problem solving, verbal reasoning, working memory and attention.

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Problem Solving

Problem solving is another umbrella term, encompassing the activities related to identifying and overcoming obstacles to reach a predefined goal. Probably the most complex cognitive process that we engage in, it draws on nearly all of the other aspects of executive function.

Here is the traditional problem solving cycle, with related EF components in parentheses:

  1. Identify the Problem (attention, initiation of action, monitoring of actions, working memory)

  2. Define the Problem (cognitive flexibility, reasoning, working memory)

  3. Form a Strategy (planning, reasoning, cognitive flexibility)

  4. Organize Information (working memory, attention, reasoning)

  5. Allocate Resources (planning, initiation of actions, inhibition, cognitive flexibility)

  6. Monitor Progress (attention, working memory, monitoring of actions, inhibition)

  7. Evaluate Results (working memory, reasoning, planning)

For me, that list is missing a very critical step: Recognize That a Problem Exists. Because this is where I often run into trouble with problem solving. I’m pretty good at reasoning out solutions to a defined problem. Not so good at actually recognizing the presence of a problem. And that’s executive function too.

And again there is an ironic twist lurking under the surface here: when someone else is having a problem, what is the default autistic response? Fix it! Come up with a plan! Whether they want us to or not.

We are instinctive problems solvers, but only when it comes to other people’s problems, it seems. Maybe because we wish other people would do this for us? Executive function is such a strange beast.  Continue reading Executive Function Primer (Part 2)

Executive Function Primer (Part 1)

I’ve written a lot about executive function, but I realized recently that I don’t have a post that explains what EF is. I set to write one post and 4000 words later, I have a short series. This is part one. The three remaining parts will be posted over the next two weeks.

So what the heck is executive function, anyhow?

Executive function is a broad term that refers to the cognitive processes that help us regulate,  control and manage our thoughts and actions. It includes planning, working memory, attention, problem solving, verbal reasoning, inhibition, cognitive flexibility, initiation of actions and monitoring of actions.

That’s a nice concise definition, in theory, but what does EF look like in real life?

In practice, executive function is a slippery concept. Sometimes it looks like responsibility. Sometimes it looks like self-discipline. Sometimes it looks like being a competent adult.

If you have poor EF, people might mistake you for being disorganized, lazy, incompetent, sloppy, or just plain not very bright. Why? Because executive function encompasses so many essential areas of daily living. Nearly everything we do calls on areas of executive function. Cooking. Cleaning. Parenting. Work. School. Self-care.  Continue reading Executive Function Primer (Part 1)

Scenes from Silent Monday (I)

Happy 2014! I hope you’re all staying warm. This is the first in an occasional series of reflection posts about Silent Monday. 

Intentional silence–silence by choice on Mondays–is forcing me to think hard about involuntary silence. It’s also raised the question of when do I need to speak and why?

Passing someone on the street? That seems like an obvious don’t need to speak situation. A nod, smile, wave or some other gesture passes for acknowledgement of the other person’s greeting or existence.

Impromptu question from a stranger at the gym? Might be able to take care of that with a nod or gesture. Might have to speak.

Picking up a package at the apartment office? One (but not both) of us will have to speak. The Scientist and I divide up the responsibility, taking turns doing the necessary interacting with strangers.

Replying to a stranger who stops me on the street to ask for directions? Obviously requires speaking.

A set of rules forms and like most rules, they work until I run up against the unforeseen exception.  Continue reading Scenes from Silent Monday (I)